New York Narcolepsy Support Group

Listening starts with creating opportunities for people to share their experiences. Through the Narcolepsy Network Listening Project, we’re bringing the voices of people living with narcolepsy and idiopathic hypersomnia (IH) into conversations that can help the biopharma community better understand what matters to those directly impacted. These conversations offer valuable insight into real-world experiences, from learning about emerging treatments to making decisions about care and navigating access.

On Friday, November 13, ahead of the 2026 New York National Seminar, Narcolepsy Network will bring together people living with Narcolepsy Type 1 for an in-person Listening Session focused on the evolving treatment landscape. Participants will have the opportunity to share how they approach treatment decisions, where and how they learn about new options, and the challenges they encounter along the way. Narcolepsy Network has engaged Cullari Communications Global, an independent stakeholder relations firm, that will assist in an equitable, public application and recruitment process aimed at bringing a diverse range of experiences and perspectives to the conversation.

We invite you to join us in NYC for a fabulous day to connect and learn with leading doctors and researchers, and support one another! Explore clinical research, navigating mental health issues, medications, and managing narcolepsy and IH.